Physiotherapy

Oliver started physio. this week.

Reason for Physio. Assessment:

- Oliver has Spina Bifida, hydrocephalus and chiari 2.

Assessment Finding:

-Head shape- mild left parietal flat spot, he favours his head turned to his left side. Hydrocephaly being monitored by his doctors.

- Full passive neck rotation.

-Oliver holds his left leg bent up at his hip and outwardly rotated. The right leg flaccid. Full passive arm and leg movements.

 Plan:

- Since Oliver is so young they start out real slow. Right now we are working on proper positioning, stretches.

- Gentle range of motion activities for his legs and arms.

- Encourage Oliver to turn his head to his right side.

- A variety of play postioning.

Off to Oliver's appointment. He's still unsure of he's carseat as he doesn't go in it much other then we go to his appointments.

Follow Up Appointments

Today we met with the neonatal neurosurgeon who did Oliver's back surgery. It was a follow-up appointment, the doctors main concern was Oliver's head circumference it has been increasing about a centimeter a week since we come home from the hospital three half weeks ago. Oliver's soft spot on the top of his head is still soft so he doesn't need that shunt right now. But he said to be prepared to have one done in the next couple of weeks as Oliver's head is been increasing in size. We will just keep watching his head circumference for now, if it keeps growing then we need a shunt. I'll phone in the measurements next Tuesday. Then when we go up on March 7 for the mylomenigocele spina bifida clinic, where we meet with multiple specialist, the neonatal nuero surgeon will check Oliver again. If Oliver's head gets worse by then we might be staying up there to get the surgeon done that week... Oliver's pediatric plastics doctor are very pleased with how Olivers back is looking. He said the scar tissue is looking very healthy and the purple color will fade as it heals overtime. We are forever grateful for the prayers of everyone that has followed our story.

Oliver's First Shower

We waited quit a while before we gave Oliver a shower, as we wanted his back to heal up. So we have been only giving him cloth baths. Oliver back has been looking really good so we felt that he was okay to give him a shower. We still want to wait till after his follow up appointment this week before we give him a bath. AS we don't want his back to sit in water. Oliver loves the shower! Which is no surprise to me as I would have a long hot shower almost every night when I was pregnant, as it was very relaxing, especially with the pelvis pain that I got.

Oliver will calm down when he hears he shower water running.

Oliver all relaxed.

 One clean baby.

Pink Shirt Day!

Today is Pink Shirt Day -Anti Bullying Day! Learning to be kind, be nice, use kind wards, say I'm sorry, share, smile and be a good friend to everyone. We all have our differences and that's what makes us all special.

Supporting our pink shirts

 Our crafts for Pink Shirt Day.

Oliver's 4 Weeks

Oliver's doing well. His spinal surgery went very well and is healing up good. We have the follow up neuro surgeon and plastics appointments this week. He has full bladder and bowel function, which is so nice. He has hip movement, and slit upper leg movement in one leg. We think he has feeling in his legs. He also has normal muscle mass in his legs which is good. We start physiotherapy this week with Oliver, so we hope this helps his leg movement. We also start the mylomenigocele clinicMarch 7th with all the other specials. We ares still monitoring Olivers head circumference to see if he needs a shunt. He's head circumference is increasing a bit, so this week we meet with he neural surgeon at the follow up, we will see how much of a increases is okay.

I love that he has taught me to appreciate all the little things in life. 

Valentine's Day/ Family Day Long Weekend

We had a good Valentine/ Family Day Long weekend.

 Lincoln's had his first school Valentines party. He had a great time and loved getting cards from all his friends.

Josh had to work Saturday. Nana-moto helped make it possible so we could get out of the house.  It's a bit tricky on my own as I can't carry anything over 10 lbs (so I can't carry Oliver in his car seat) and I can't drive for 6 week post c-section. We also got to visit Papa-moto at work while we do our Home Depot Kid Workshop.

Valentine's morning we woke up and made a Valentine's breakfast together, red heart french toast with pink milk. Lincoln an Lacey loved it!

Lincoln and Josh even got a nap in together.

Valentine's Day 2016

Happy Valentine's Day

Will you be my Valentines?...I am always thankful that we are married.  I love how we are together. I love that we still find things to talk about. I love that we can still make each other laugh. I love that we know each other so well. I love how you understand me. I love how we're a team. I love that our kids love you so much. I love that you love being a dad. I love your hugs. I love it when you kiss. I love falling asleep with your arm around me. I especially love when you help around the house. I love that we enjoy many of the same things, but are fine with having our own seperate interests as well. I love that we have experienced so many adventures together and have grown closer together because of them. I love our life together.Most of all, I love you. I'm grateful every day that we are together. The past 8 years have seemed like no time at all.  Luv you tones, Kayla

I will definitely be your valentine, you amaze me.  You are such a strong woman with a strong spirit to do what's right and what's best for our family. Always making sure that we are on the straight and narrow, being an amazing mom, wife and friend. You are a rock for our family and I don't think I could get through life right now without you. You are so good at seeing the good in a situation and pushing through a trial in our life. I love you so much for everything that you are and what you do for our family. You make my life worth living and each day worth trying harder to be a better husband and friend you. Happy Valentine's Day - Josh