Monday, 29 February 2016

Life As We Know it

Life is good and very busy. Here's a few things that we have been up to.

Can't believe how big Oliver's getting.

My boys having night time snuggles together.

Lacey adores her little brother and loves holding him.

Feeding time!

Mini Golfing with cousin Abigail.

Oliver's first real bath. He loved every minute of it.

Lincoln and Lacey loved pouring water on Oliver to keep him warm. By the end of the bath Oliver had fallen asleep.

Saturday, 27 February 2016

First 5 Weeks Of A Mom of 3

Oliver jointed our family five weeks ago. Five weeks ago, I became a mother for the third time over. We are now a family of five! I see my firstborn Lincoln, Oliver's big brother. My daughter Lacey, Oliver's big sister. I see my husband, Oliver's dad. I see myself, Oliver's mom. But more than that, I see sweetness and beauty and resilience. I see heaven in his big beautiful eyes. I see strength and I see our little newborn, who has blessed our family.
These weeks has been tiring and busy. If you've ever brought home a newborn, you know. The days have blurred into one another. Add two rambunctious kids on top of that, and life is pretty busy at the moment. While still running my Day Home, thanks to the help of my sister in-law Sara.
 I'm feeling the pull between my three kids. I'm torn between giving my newborn my everything and letting his two older siblings know they are still my everything, too. My love has multiplied, but my arms haven't. And that's hard, but I know it's something I'll figure out, in time. The pieces will eventually fall into place and we'll get our rhythm down.
As with everything in life, it's just going to take some time. So for now, I'll continue to give my all to three kids, as much as I possibly can. I'll continue to love them with everything I have and pray that they feel it's enough. And yes, this is hard. Nobody ever said parenting would be easy. And parenting three is a whole new ballgame. Plus adding in the many appointments that come along with Oliver having Spina Bifida. But there's a reason not all people stop at one baby. There's a reason we decided to have another one and another.
The night time feeds that turn into exhausting days are worth it. The guilt and fear of not being enough will subside. I will soon be more than just a milk machine, as beautiful as that may be.


And we will be left with these three precious beings to call our own. I'm already so in love, and I can't imagine once I adjust better this our new normal, just how much deeper I will fall.

Physiotherapy

Oliver started physio. this week.

Reason for Physio. Assessment:
- Oliver has Spina Bifida, hydrocephalus and chiari 2.

Assessment Finding:
-Head shape- mild left parietal flat spot, he favours his head turned to his left side. Hydrocephaly being monitored by his doctors.
- Full passive neck rotation.
-Oliver holds his left leg bent up at his hip and outwardly rotated. The right leg flaccid. Full passive arm and leg movements.

 Plan:
- Since Oliver is so young they start out real slow. Right now we are working on proper positioning, stretches.
- Gentle range of motion activities for his legs and arms.
- Encourage Oliver to turn his head to his right side.
- A variety of play postioning.

Off to Oliver's appointment. He's still unsure of he's carseat as he doesn't go in it much other then we go to his appointments.

Thursday, 25 February 2016

Follow Up Appointments

Today we met with the neonatal neurosurgeon who did Oliver's back surgery. It was a follow-up appointment, the doctors main concern was Oliver's head circumference it has been increasing about a centimeter a week since we come home from the hospital three half weeks ago. Oliver's soft spot on the top of his head is still soft so he doesn't need that shunt right now. But he said to be prepared to have one done in the next couple of weeks as Oliver's head is been increasing in size. We will just keep watching his head circumference for now, if it keeps growing then we need a shunt. I'll phone in the measurements next Tuesday. Then when we go up on March 7 for the mylomenigocele spina bifida clinic, where we meet with multiple specialist, the neonatal nuero surgeon will check Oliver again. If Oliver's head gets worse by then we might be staying up there to get the surgeon done that week... Oliver's pediatric plastics doctor are very pleased with how Olivers back is looking. He said the scar tissue is looking very healthy and the purple color will fade as it heals overtime. We are forever grateful for the prayers of everyone that has followed our story.

Wednesday, 24 February 2016

Oliver's First Shower

We waited quit a while before we gave Oliver a shower, as we wanted his back to heal up. So we have been only giving him cloth baths. Oliver back has been looking really good so we felt that he was okay to give him a shower. We still want to wait till after his follow up appointment this week before we give him a bath. AS we don't want his back to sit in water. Oliver loves the shower! Which is no surprise to me as I would have a long hot shower almost every night when I was pregnant, as it was very relaxing, especially with the pelvis pain that I got.

Oliver will calm down when he hears he shower water running.

Oliver all relaxed.

 One clean baby.

Pink Shirt Day!

Today is Pink Shirt Day -Anti Bullying Day! Learning to be kind, be nice, use kind wards, say I'm sorry, share, smile and be a good friend to everyone. We all have our differences and that's what makes us all special.

Supporting our pink shirts

 Our crafts for Pink Shirt Day.



Thursday, 18 February 2016

Oliver's 4 Weeks

Oliver's doing well. His spinal surgery went very well and is healing up good. We have the follow up neuro surgeon and plastics appointments this week. He has full bladder and bowel function, which is so nice. He has hip movement, and slit upper leg movement in one leg. We think he has feeling in his legs. He also has normal muscle mass in his legs which is good. We start physiotherapy this week with Oliver, so we hope this helps his leg movement. We also start the mylomenigocele clinicMarch 7th with all the other specials. We ares still monitoring Olivers head circumference to see if he needs a shunt. He's head circumference is increasing a bit, so this week we meet with he neural surgeon at the follow up, we will see how much of a increases is okay.

I love that he has taught me to appreciate all the little things in life.