On wednesday Josh and I headed back up to Calgary for another day of specialist appointments. My mom was able to help with my day home and Lacey & Lincoln, which was nice. This time we were scheduled to see Dr. Jay. Ria-Cambrim who's the paediatric neurosurgeon, to see whats next for the baby and try to understand a little more of what is going on.
When your pregnant with a baby with Spina Bifida, they give you three opions.
1- There is a surgery that can be done in utero (in the womb) before 25 weeks. It's known as the M.O.M. surgery, which is in it's last phase of the trial. This surgery is only done in the states. It does not correct any of the nerves that have already been damaged, however it does prevent further damage as the surgery is done to put the spinal cord back in side. The mom is then given a lot of meds, to try to stop you from going into labour. In most cases the mom gives birth by 32 weeks.
2- The alternative is waiting for birth and they will do a surgery within 48 hours of birth.
3- To end the pregnancy.
Josh and I both knew option 3 was out of the question. I never thought I would have to make a hard decision like this as a parent. We were very overwhelmed with the decision we had to make. But apparently 87% of people that find out they have a baby with Spina Bifida end up choosing number 3. Sad world.
We look forward to our appointments with all the doctors so we can find out more information. But after our appointments there's also a huge overwhelming feeling with everything we have found out. It's always a lot to process. How do we know if we are making the right decision?
We look forward to our appointments with all the doctors so we can find out more information. But after our appointments there's also a huge overwhelming feeling with everything we have found out. It's always a lot to process. How do we know if we are making the right decision?
Here's some advice we got from our Stake President/ Family doctor: Get the info - make the decision based on how you feel after you got it. If you feel good about that decision trust that feeling. You'll only ever get to know one option though. Have to trust your feeling. D&C 6:23 "Did I not speak peace to your mind concerning the matter? What greater witness can you have than from God?"
No comments:
Post a Comment