It's been four weeks since Oliver's shunt surgery. It's been two weeks since we went to the ER for Oliver's bugle where the incision is just above his shunt. The last few days we have noticed that the bugle has gotten a bit bigger. And only sometimes goes down when he's elevated. So I feel more concerned... I called the Alberta children's hospital to see if we could see a nuerosugeron today on our way back from our summer holidays. No such luck but I was able to talk to one of Oliver's nuerosugeron on the phone, he reassured me that what's happening can be common. The hole that they drilled into Oliver's scull for the shunt tubbing to go through is a bit bigger then the tube it's self. With this the CSF spilling near the shunt creating this bugle. Dr Riva- Cambrin said we need to be very religious a keeping Oliver at 45' degrees in his crib ( mattress inclined like a hospital bed), in a bouncy chair, car seat, etc. As the bugle can fill up in 20 minutes when laying horizontal. If we keep him inclined his body should be able to absorb this extra CSF that's leaking in 3-4 days. Then his body will be able to fuse the scull hole to the shunt tubbing. This can take up to 6 weeks. Once the scull fuses we should not have this problem again. I hate watching and waiting but that's what we have to do so I'm trying to not stress to much. But it's so hard and I worry.
No comments:
Post a Comment