My life was changed a year ago
today, when I received the diagnosis that our baby boy would be born with spina
bifida. He was born with an opening in his spine that required surgery when he
was only 1 day old. I have to admit, one year ago, our family was frightened to
learn all of the complications that could happen with a child born with spina
bifida. The doctors told us the hard cold facts, your kids going to have
paralysis, clubfeet, loss of bladder and bowel control. It also can cause
learning disabilities to mental retardation, and sometimes an enlarged or
abnormal head size.
It’s much easier to create optimism once you’ve
had, or come to know a child with spina bifida. Our doctors didn’t
tell us that we were going to love our child unconditionally like your other
children. That we will experience joy being his parents and having him apart of
our family. That he’d have a smile that light up a whole room, be a social
butterfly and that he’d be the happiest baby around.
I find myself documenting his life and learning
that he was born perfectly made, despite the imperfections we once feared.
I
am humbled that the lord would trust us with Oliver. And I am humbled that he
believes that we are strong enough to be the parents he needs.
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