I feel like I haven't done an update in a while. Oliver is doing great! It's going on 3 months keeping Oliver elevated (45 degree or high) 24/7. At first it was hard making sure he was always elevated but now it's the norm and it's just a part of our life. His bulge is starting to go down more, which means there is less CFS seeping past the shunt and Oliver's skull has been able to start fusing together.
It's also been 3 months since Oliver had his shunt surgery. Recovery has gone well! The VP programable shunt is doing what it's suppose to be doing, as his head hasn't grown in 3 months!!!! Allowing his brain to slowly grow into his head size, as the csf levels go down. Oliver's head is the size of a 18 month old, so his head isn't suppose to grow for the next 9 months. As Oliver's body grows into his head size, it will make holding his head up and doing physical movement things easier.
Our main focus right now is physiotherapy. We are doing stretches each day to help Oliver suffering from Torticollis. Torticollis is a tightening of the neck muscle on one side, causing his head to tilt towards the right. So we are working with him and doing different exercises to try and help him correct it.
Weight: 21 lbs (65th percentile)
Length: 28.8 inches ( 50th percentile)
Head: 49.5 cm ( above the 100th percentile)
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