What a night!!! We had to make a trip to the ER tonight. After Oliver's VP programable shunt surgery two weeks ago, all has been going well. No signs of infection. We've been told to watch for redness and warmness by the scar, as these are signs of infection. Oliver hasn't been sympathetic, which would indicate that there would be a malfunctionin with the shunt. He's his happy little self. Then tonight I noticed a new bulge under his scar. There has always been a bump where the shunt is located... Josh and I both thought we should take him into the ER to have a better understanding of whats happening. On our drive to the ER I made a call to the neurosurgeon on-call in Calgary. When you call the neurosurgeon on-call they then page the doctor and you have to wait for a phone call back. Since we've never had to make this call before we didn't know how long we'd have to wait to hear back. I also messaged another Spina Bifida mom who's son is two, to see if she has ever experienced this with her son. She hadn't ever heard of this so she thought we were doing the right thing too by bring Oliver in to the ER. I felt sick to my stomach and so helpless not knowing what was going on with Oliver. I just wanted to be able to help him.
After our ER visit and contacting the nuerosugeron on-call at the Alberta Children's Hospital the doctors believe Oliver's shunt is leaking CSF fluid. They want us to just monitor it for now, making sure the bulge doesn't keeping growing. Hoping that it corrects it's self... It's so hard not knowing what's happening but just having faith things will work out.
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