Myelomeningceole Clinic

We had a long busy day at myeloemeningocele  clinic. Here's an update of Oliver's day at the clinic. Oliver is 23 weeks weighting 17.6 lbs weight and his head circumference 49.3cm. So it grew 1.0 cm in a week when it's usually growing .25cm a week.

Neurosurgeon - Oliver's head circumference is still above the 100th percentile and increasing in circumference. Olivers head circumference is a concern to them at this point, so he got an MRI done to get a better understanding of what should be done. He's still a very happy and content baby. When a baby needs a shunt they look at head circumference, ventricle size and baby's well being ( irritable, vomiting, loss of appetite).... Our Nuerosurgeon Dr Riva-Cambrin is on holidays so we saw Neurosurgeon Dr Hader. From Olivers MRI results it shows that Olivers verticals are increasing as well as his head circumference. Olivers soft spot also isn't as soft and sunken like before, it's more full. With these concerns, the doctors feel that Oliver needs a shunt in the next week to two weeks. We'd like to see if Oliver is a candidate for the ETV procedure instead of the shunt. But with Olivers Nuerosurgeon on holiday we will most like have to do a shunt as he cant wait till his Nuerosurgeon to be back off holidays which is kinda discouraging. Everything with Oliver has worked out so far, so we are trying to have faith that things will keep working out the way they are supposed to. We are now waiting to hear when Oliver's surgery will be

Orthopaedic - Orthopaedic Dr.Kefer says everything looks good.  He's happy with Olivers hip rotation. He did have concern with Oliver's hips at 3 months, as he thought he had a dislocated hip but he doesn't now. Hip ultrasound at 3 months ruled that out. He will do a spine and hip X-ray at 1 year. 

Physiotherapist - The physiotherapist is happy with all the stretches we are already doing. We still need to stretch Olivers feet as much as we can. Oliver is given orthopaedic shoes, which he needs to wear as much as possible to help stretch his feet out flat.

Nephrology - No concerns with bowel or bladder. We will have a routine ultrasound when Oliver's one.

Lincoln and Lacey soon realized that the appointments weren't all that fun especially when you have 6 appointments back to back. Thanks to an amazing hospital for kids they have an awesome park out side for the kids. Lincoln and Lacey went and played with Josh while did appointments with Oliver.