All in all Myelo Clinic was good! It was a busy day with ultrasound, pelvic x-ray
Urology said his kidneys are awesome, bladder is better than last time, no residual sediments. The urologist hasn’t seen spina bifida kidneys that nice for a while. The urology specialist said that he has a good chance of being able to have bowel control, Normally spina bifida at his level she says less than 10%, she thinks he has greater than 60% chance. So not guaranteed but a better chance than most
Nureo -Sedation MRI that Oliver had back in April, well we finally got the results. Reason it took so long is we didn't want to make a trip to Calgary it they had no concerns for a 10 min appointment. They wouldn't give us the results on the phone, they would only say if it was urgent or if we could wait till myeo clinic. So we were able to wait till myeloma clinic and get the result now. Ventricles look good for brain size and age... meaning his shunt is doing what it's suppose to be doing.
Physio - wrote down some things for Audrey (our Lethbridge physio) for different exercises but he wasn’t worried about the frog legs. They liked the wheelchair said it’s perfect for what he’s at right now.They said he will get used to it more as his arms get a little longer
but we are STILL waiting on custom siting set custom.
They weren’t happy with his AFOs and want changes made. Easier said then done. We get he's AFO's made in Lethbridge. If we aren't happy with the centre in Lethbridge we might have to start going to Calgary for AFO's. Which i'd really like to avoid. Oliver's left pair are his new ones that we just got done two months ago. They aren't tall enough, as you can see that are as tall as his blue set he got when he was one. They want the ankle stamps to be lowered.... We have meet with the AFO's centre here and said the height right now is okay but if he grows then they will make new ones. Well they better as they need to last till he is 3.5 years old ( so another year) and we can't afford $3000 for a new set. So time will tell.
No comments:
Post a Comment